Long COVID Resources
For you

If you suspect you or someone you know has Long COVID, we have your back. That’s why we’ve curated the list of resources* below to help you and your loved ones.

Introduction to Long COVID

It’s estimated that up to 40 million Americans are suffering from Long COVID, a disease that lasts long after you test negative from having COVID-19. People with Long COVID report symptoms like brain fog, dizziness, fatigue, and more.

Below, you’ll find answers to common questions and resources to help you assess your risk for Long COVID, find support after a diagnosis, or even join a study to help gather data on Long COVID to help you and your loved ones who may be impacted by Long COVID.

Assess your risk for Long COVID

We have created an assessment on our app to help you recognize your likelihood of suffering from Long Covid, find treatment options, and explore resources for more information.

Take our assessment to see if your symptoms could be related to Long Covid, and what next steps are.

Go to the On/Go App
Stay up-to-date

Long COVID can feel overwhelming, especially with information changing and being updated constantly. Check back here will be continually reviewing and updating our resources as we learn more and get the latest information from our advisory team of doctors who are focused on this topic.

Get Support

We know that Long COVID may feel isolating. We’ve curated a list of some of the best support groups that exist on the internet today; you are not alone.

Find treatment

See below for a list of facilities, services and specialists that focus on long COVID. We will continue to update this list as we find new care centers.

Join a Study

Click the links below to find open studies in your area. Each study has specific enrollment criteria so review a few if you don’t find the first is a good fit.

FAQ
What is Long COVID?

Post COVID condition or Persistent Sequelae of SARS-CoV-2 (PASC) are terms used to describe the long term impact of COVID that develop for some people after a COVID-19 infection. Medicine does not know exactly why some people develop persistent symptoms after a COVID infection and research is being done to better understand and find treatments for long covid. PASC is described by the World Health Organization as a condition that occurs after a COVID-19 infection (either confirmed or presumed) and this condition usually occurs 3 months after COVID started. The symptoms a person with post COVID experiences usually have been occurring for at least 2 months and they cannot be explained by some other problem. The symptoms themselves are wide ranging and can come and go over time or they may have been occurring from the time of the initial covid infection.

For people with PASC the symptoms they experience generally impact their daily life in a negative way and many complain of fatigue, shortness of breath, trouble thinking clearly, cough, anxiety and a variety of other symptoms. In fact almost any symptom may be persistent and found to be troubling long after an initial COVID-19 infection

What are the symptoms?

There are many symptoms that can occur after the initial infection and sickness caused by COVID-19.  Doctors and patients generally put the symptoms into different categories based on the area of the body impacted.  Some of the more common symptoms that people experience are:

  • Breathing or Respiratory symptoms
Shortness of breath
Cough
Wheezing
  • Heart or Cardiovascular symptoms
Chest tightness
Chest pain
Heart Palpitations (abnormal heart beats)
  • Generalized symptoms
Fatigue
Fever
Body aches and Pains
  • Neurological or brain symptoms
Cognitive or thinking (‘brain fog”, loss of concentration, memory issues, “fuzzy headed”)
Headache
Sleep problems
Pins and needles or numbness
Dizziness
Difficulting moving or troubling with balance
Trouble with vision
Depression
Anxiety
  • Gastrointestinal or abdominal symptoms
Abdominal pain
Nausea and vomiting
Diarrhea
Weight gain or loss
  • Musculoskeletal symptoms
Joint pain
Muscle pains
  • Head, Ear, Nose
Tinnitus or ringing in the ears
Ear ache
Sore throat
Loss of taste and/or smell
Nasal congestion
Hair loss
How do I know if I have it?

There is currently no test or study that can tell you definitively if you have post covid syndrome or long COVID. The diagnosis of long COVID is made after consulting with a provider that is knowledgeable in this disease. Specialists in post covid care will review your history and symptoms and work with you to determine if COVID is the most likely cause and if it is what support and treatment you may need. Your symptoms are reviewed thoroughly and appropriate tests performed depending on your complaints. These tests may include blood work, x-rays, studies of the heart, CT scans and even specialized testing of your lungs. Long COVID usually occurs 4-12 weeks after a COVID infection and can occur even when the initial infection was mild or had no symptoms.

How common is Long COVID?

There is a lot that we still don’t know about Long COVID. Estimates of Long COVID range from 5-30% but differ based on variant, age, gender and pre-existing conditions.

* These resource links are provided as a convenience and for informational purposes only; it does not constitute an endorsement or an approval by Intrivo of any of the products, services or opinions of the corporation or organization or individual. Intrivo bears no responsibility for the accuracy, legality or content of an external site or for that of subsequent links. Contact the external sites for answers to questions regarding their content.

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